General Carers   www.direct.gov.uk/carers The Government’s website for carers.   www.carers.org The Princess Royal Trust for Carers. Information and support for carers.   www.icis-info4life.org.uk An information service putting people in touch with services offering care, support or advice in West Sussex.   www.carersuk.org The website for Carers UK.   www.carerssupport.org.uk Carers Support Services for North and Mid Sussex.   www.carerswsx.org.uk Carers Liaison Service for Worthing, Adur, Arun and Chanctonbury.   www.carersliaison.org.uk Carers Liaison Project for Regis, Chichester and Rural.   www.westsussexcarers.org.uk The website for carers in West Sussex.   www.aceradio.org The ACE National partnership, led by Carers UK, is working to support the inclusion of carers in training and work, funded by the European Social Fund's Equal programme   www.ukselfhelp.info UKselfhelp have an online directory of UK self help groups and support organisations.   www.carersnet.org.uk For information on Carers Rights.       General Health   www.dh.gov.uk Department of Health.   www.nhsdirect.nhs.uk NHS Direct. General health care advice, including frequently asked questions and the facility to email your enquiry.   www.direct.gov.uk A Government site with information and links for carers. Under ‘Find what you need’ choose ‘Caring for Someone’.   www.crawleypct.nhs.uk Crawley Primary Care Trust.   www.hcpct.nhs.uk Horsham and Chanctonbury Primary Care Trust.   www.mspct.nhs.uk Mid Sussex Primary Care Trust.   www.brighton-healthcare.nhs.uk Brighton and Sussex University Hospital NHS Trust (includes the Princess Royal Hospital, Haywards Heath).   www.surreyandsussex.nhs.uk Surrey and Sussex Healthcare NHS Trust (includes East Surrey and Crawley Hospitals.   www.wshsc.nhs.uk West Sussex Health and Social Care NHS Trust (services for mental health, learning disabilities and substance misuse).   www.stpeter-stjames.org.uk St Peter and St James Hospice and continuing care centre.   www.stch.co.uk St Catherine’s Hospice. Specialist palliative care centre.       Local Government   www.westsussex.gov.uk The West Sussex County Council website with links to Caring and Social Services.   www.crawley.gov.uk Crawley Borough Council.   www.horsham.gov.uk Horsham District Council.   www.midsussex.gov.uk Mid Sussex District Council.       Parent Carers   www.cerebra.org.uk A site for brain injured children and young people and their families.   www.cafamily.org.uk Contact a Family provides information for families caring for children with disabilities or special needs.   www.cancerbacup.org.uk Information on types of cancer, treatments and practical aspects of living with the disease.   www.epiweb.org A website set up by parents for parents of children with epilepsy.   www.face2facenetwork.org.uk A one-to-one befriending service for parents with disabled children.   www.nas.org.uk The National Autistic Society website including information about Autism and Aspergers Syndrome, a guide for parents and carers, publications and frequently asked questions.   www.wellspringwestsussex.org.uk Provides information, dialogue and discussion with and for children and young people with disabilities, and their parents and carers in West Sussex.       Young Carers   www.youngcarers.net The Princess Royal Trust for Carers site for young carers.   www.youngcarer.com A national site for young carers and their families.   www.sibspace.org A website for brothers and sisters of children with all disabilities enabling them to get in touch with each other.   www.westsussex.gov.uk West Sussex County Council team for children with caring responsibilities.       Learning Disabilities   www.learningdisabilities.org.uk The Foundation for People with Learning Disabilities site that provides information on the causes, syndromes and rights of those with learning difficulties.   www.mencap.org.uk Support and information for families/carers of children with learning difficulties.       Mental Health   www.connects.org.uk The mental health and learning disability site containing information on health and learning disabilities, news items and events.   www.mentalhealth.org.uk The Mental Health Foundation site with information on problems, treatments and strategies for living as well as fact sheets including one for carers of people with mental health problems.   www.mind.org.uk Has a wide range of information about mental health, how to get help and approaches to care.   www.rethink.org Information for people affected by severe mental illness, including schizophrenia, as well as their carers and families.   www.sane.org.uk The Saneline website - providing information and support for those experiencing mental health problems, their families and carers.       Information about Particular Conditions   www.cancerbuddiesnetwork.org An online support network for anyone affected by cancer.   www.ukselfhelp.info A website listing numerous UK self-help groups websites and telephone numbers.   www.afasic.org.uk The parent-led organisation helping children and young people with speech and language impairments and their families. Information, latest news, good practice and local groups.   www.arthritiscare.org.uk Information on arthritis, treatments and everyday life as well as news, campaigns and useful contacts.   www.alzheimers.org.uk The Alzheimer’s Society website with useful fact sheets and advice.   www.brittlebone.org Useful information on issues surrounding brittle bone diseases including news, help and advice, recent research and links.   www.dsa-uk.com Down’s Syndrome Association website with details on health, speech and language therapy, education and welfare as well as information and support for new parents.   www.headway.org.uk The Brain Injury Association website containing information on publications, local branches, support for families etc   www.macmillan.org.uk The Macmillan Cancer Relief website with details of the services provided by Macmillan, information and advice, news and publications.   www.mssociety.org.uk The Multiple Sclerosis Society site containing a ‘New Carers’ page found under ‘Living with MS’.   www.parkinsons.org.uk The website of the Parkinson’s Disease Society containing useful fact sheets . Also a section on ‘Carers, Families and Friends under ‘Living with Parkinsons’.   www.rarechromo.org Rare Chromosome Disorder Support Group. A source of information and support for families and carers.   www.rheumatoid.org.uk The National Rheumatoid Arthritis Society website containing advice and information on all aspects of the disease.   www.rnid.org.uk A comprehensive site including fact sheets on many aspects of deafness, hearing loss and tinnitus.   www.rnib.org.uk A range of information about sight loss, useful products, education, employment, leisure etc.   www.scope.org.uk The Cerebral Palsy information and support organisation for families and carers of people with Cerebral Palsy.   www.stroke.org.uk The Stroke Association website including family support, details of stroke clubs and useful booklets including a carers guide.   www.tht.org.uk A comprehensive site covering all aspects of HIV and AIDS.   www.wsdeaf.org.uk West Sussex Deaf and Hard of Hearing Association. Information for deaf, deafblind and hard of hearing people in West Sussex.   www.4sightsussex.co.uk West Sussex Association for the Blind.       General Information including information on benefits   www.acwestsussex.org Age Concern West Sussex with links to the national organisation site and their broad range of fact sheets.   www.adviceguide.org.uk The national Citizens Advice Bureau site.   www.crusebereavementcare.org.uk A site for anyone who has been affected by death including ‘When someone dies’, ‘Helping children’ and ‘Coping with major personal crisis’.   www.disabilityalliance.org Designed for people with disabilities, their carers and anyone who needs advice on benefits.   www.helptheaged.org.uk Information sheets on benefits, paying for care, equipment etc.   www.direct.gov.uk Directgov - information for disabled people.   www.direct.gov.uk Directgov - information for carers.   www.thepensionservice.gov.uk First port of call for state and private pensions information on the web.       Disability and Equipment   www.disabilityequipment.org.uk The Disability Equipment Register contains details of second hand equipment for disabled people, for sale in the UK. Includes furniture, hoists, children’s equipment and scooters etc.   www.dlf.org.uk Disabled Living Foundation containing fact sheets on specific pieces of equipment including suppliers and possible sources of funding.   www.drc-gb.org The Disability Rights Commission providing advice and information on the rights of disabled people.   www.remap.org.uk REMAP produces technical equipment adapted to match the particular needs of the disabled person.   www.ricability.org.uk Research and information for consumers with disabilities.   www.youreable.com provides information, products and services for the disabled.   www.equipforlife.org.uk for your used mobility and disability equipment needs, offering free Classified Ads for secondhand disabled equipment.       Holidays   www.calvert-trust.org.uk Outdoor activities for disabled people at three sites in the UK.   www.holidaycare.org.uk Information for people with disabilities and their carers on travel ad holiday information both in the UK and abroad.   www.groomsholidays.org.uk A holiday service for disabled people providing information on accessible hotel and self-catering holiday properties.   www.vitalise.org.uk (formerly the Winged Fellowship Trust) provides breaks for disabled adults and children and their carers.       Information about Care Home Providers   www.bettercaring.co.uk This site has a searchable database of 18,600 residential and nursing homes across the country. It also has advice and information on fees, selecting the right home etc.   www.caringinfo.com Information on West Sussex residential homes and other independent care providers.   www.helptheaged.org.uk Advice on the best way to meet the costs of care as well as the types of care available.   www.housingcare.org The site of the Elderly Accommodation Council with advice and information on all types of accommodation for older people.   www.nhfa.co.uk Nursing Homes Fees Agency provides advice and information on obtaining and paying for all types of care. The site covers legal matters, choosing a home and useful contacts.   www.csci.org.uk The Care Standards Commission site – a directory of care services and care service inspection reports.