Living with and caring for an autistic adult can be extremely rewarding, but also comes with many challenges. We can offer a flexible programme of support to improve the health and wellbeing of carers.

At Carers Support, we have specialist teams who can offer support and information about the services we offer and those offered by a wide variety of local and national organisations.  Our Autism Team can support you with:

  • A call from someone with knowledge and understanding of autism to discuss your caring role and concerns

  • Carer groups facilitated by someone with knowledge and understanding of autism to meet others to share experiences and information.

  • A monthly email with autism information for carers

  • Information, signposting and referrals to organisations that may help you and the person you care for.

  • Training and workshops

Carer Groups

We currently have a group for carers of autistic adults in Worthing.  We also have joint groups for carers of autistic adults and carers of people with a learning disability.  These are based in Chichester, Littlehampton, Horsham, East Grinstead and Worthing.

Click on the leaflet opposite to see more details of our groups.

PAPA Workshops

PAPA stands for Positive Adult Partnering of Autism. This workshop explores the complexities of living and supporting an autistic adult, whether they be your child, partner, spouse or friend. The workshops covers:

  • Autism and neurodiversity

  • Communication

  • Change and motivation

  • Relationship

  • Anxiety and mental health

  • Sensory differences

  • Reflection

  • Looking ahead

Keep an eye out for our future PAPA workshop dates.

Links and information

National autism organisations

The National Autistic Society (NAS) www.autism.org.uk.  The NAS has lots of information on all aspects of autism for autistic people, their family and carers as well as professionals working with them.

Ambitious about Autism www.ambitiousaboutautism.org.uk


Autism organisations in West Sussex

West Sussex Connect to Support – Autism page: https://www.westsussexconnecttosupport.org/s4s/WhereILive/Council?pageId=1301

Aspens www.aspens.org.uk

Aspens offers services and support to autistic adults and children as well as their families and carers.

Autism Support Crawley www.autismsupportcrawley.co.uk

Autism Support Crawley supports parents and carers of autistic adults and children.

Alongside Autism www.alongsideautism.org.uk

Alongside Autism offer training and one-to-one sessions to autistic adults. The service can be accessed via groups, one-to-one sessions and via Skype.

Alongside Autism also run the PAPA workshops for us.

Sussex Services for Autism: www.servicesforautism.org.uk

A not for profit community based service offering personalised support for autistic children and adults. Also offers support and advice to parents, carers and families.

Aldingbourne Trust: www.aldingbournetrust.org

Offers support services, including employment support to autistic people as well as people with learning disabilities.

The Curly Hair Project (CHP) https://thegirlwiththecurlyhair.co.uk/events/

An award-winning social enterprise founded by autistic author and entrepreneur Alis Rowe. CHP resources are used by individuals, families and professionals worldwide.


Diagnosis

Adult Diagnosis service in West Sussex:

West Sussex Neurodevelopmental Service:

www.sussexpartnership.nhs.uk/west-sussex-neurodevelopmental-service-neurodevelopmental-service

www.sussexpartnership.nhs.uk/assessment-adhd-or-autism-spectrum-condition-sussex-neurodevelopmental-service

National Autistic Society https://www.autism.org.uk/about/diagnosis.aspx

NHS https://www.nhs.uk/conditions/autism/getting-diagnosed/


Mental Health and autism

The first port of call is for the autistic person to talk to their GP.

Pathfinder West Sussex: https://www.pathfinderwestsussex.org.uk/ 

Pathfinder provides the following services in Adur, Bognor, Chichester, Crawley, Horsham, Littlehampton, Midhurst, Mid Sussex and Worthing:

  • A single point of access to mental health and wellbeing support

  • A range of services to support people with their mental health and wellbeing

  • Advice, information and sign-posting, including clear information about what support is available locally

  • Access to a clinical service provided by nurses and occupational therapists from Sussex Partnership NHS Foundation Trust who work alongside other Pathfinder agencies.

Sussex Recovery College: www.sussexrecoverycollege.org.uk/

Sussex Recovery College offers educational courses about mental health and recovery which are designed to increase your knowledge, skills and promote self-management. These include courses on autism / adhd/ ocd etc.

The National Autistic Society has information on mental health and autism: www.autism.org.uk/about/health/mental-health.aspx

Coastal West Sussex Mind https://www.coastalwestsussexmind.org/

CASS – counselling and autism spectrum support www.casscounselling.co.uk

CASS is a counselling service designed to help those on the autistic spectrum and to assist their families, friends, teachers and other supporters.


Employment Support

Work Aid: www.aldingbournetrust.org/workaid.html

Impact Workability: http://impact-initiatives.org.uk/services/adults-and-older-people/workability/


Advocacy

Impact Advocacy http://impact-initiatives.org.uk/services/adults-and-older-people/advocacy/


Benefits

National Autistic Society: www.autism.org.uk/about/benefits-care.aspx

Network Autism: https://network.autism.org.uk/knowledge/policy-guidance/personal-independence-payment-challenging-decision

Advice Now have some good information: https://www.advicenow.org.uk/tags/sickness-and-disability-benefits

Universal Credit Top Tips for Carers  Click here to download 

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