Here we post the latest news from Carers Support West Sussex as well as blogs from our staff, Trustees, volunteers, carers and other guest bloggers. If you think you’d like to write a blog for us, email firstname.lastname@example.org
We had regular visits to different hospitals, even Great Ormond Street, seeing physiotherapists & consultants, also a very expensive time with the travelling costs involved. The first few years were really hard. We felt totally alone getting on with it.
Matt Anderson is a Carer Wellbeing Support Worker and part of our Community and Young Adult Carers Team. He also volunteers as a Community Responder with the South East Coast Ambulance Service. Often ‘carer’ is misunderstood, people tend to think of a professional agency carer who visits [...]
Many couples in their later years are having their world changed significantly when one of them becomes the main carer due to physical infirmity, ill health or dementia.
Parkinson’s disease is a grind but because of you I don’t mind. Without you I would forget to take medication which would lead to a serious lack of co-ordination. But by guiding, encouraging and consoling me you have minimised my feeling of moving in treacle or of having a head full of cotton wool.
I do believe that we let carers down. So often when carers are involved in supporting the person they care for, the NHS and social care system professionals do not offer our single number. Surely the receptionist, booking clerk, nurse, therapist, social worker or doctor could just ask if a carer has all the help they need and give that carer our leaflet. I know those people are so busy themselves and that this gets missed or overlooked. It makes me see how much a carer is taken for granted.
Annie has been volunteering for Carers Support West Sussex for almost a decade. She's been co-facilitating support groups for most of that time but has also given talks to carers of people with mental health issues. Like many of the volunteers at Carers Support, I know [...]
I think, sometimes, it can be hard for us to communicate things that are going on at board level which will almost certainly impact on the services we provide to carers and our staff.
I heard someone describe sifting through the internet recently like “being on page one million of the worst book ever written”, and to a certain extent, I agree. But I think technology does far more good than evil and the ways we can communicate with each other have never been as large, as sophisticated or as easy.