Registering with us as a carer opens the door to a wide range of free support to suit your needs, including:
- Tailored information and support to help you with your caring role
- Opportunities to meet other carers who may have similar experiences to you
- Workshops which provide training and learning on topics such as welfare benefits
- Information about local and national organisations.
- Regular newsletter
If you would like more information about any of these services, please call us on 0300 028 8888 or email firstname.lastname@example.org
If you’re not already subscribed and would like to be added to the mailing list for our monthly updates call our Response Line on 0300 028 8888 of email us at email@example.com and ask to be added to our subscription list.
Online Carer Groups
Join our friendly group for parents, partner, spouse and friend carers of autistic adults 16+, for support, information and to chat to others and share experiences.
PAPA stands for Positive Adult Partnering of Autism. This workshop explores the complexities of living and supporting an autistic adult, whether they be your child, partner, spouse or friend.
Links and information
National autism organisations
The National Autistic Society (NAS) www.autism.org.uk. The NAS has lots of information on all aspects of autism for autistic people, their family and carers as well as professionals working with them.
Ambitions about Autism www.ambitiousaboutautism.org.uk
Autism organisations in West Sussex
West Sussex Connect to Support – Autism page: https://www.westsussexconnecttosupport.org/s4s/WhereILive/Council?pageId=1301
Aspens offers services and support to autistic adults and children as well as their families and carers. Aspens are currently offering a 30 minute virtual family support clinics.
Autism Support Crawley www.autismsupportcrawley.co.uk
Autism Support Crawley supports parents and carers of autistic adults and children.
Alongside Autism www.alongsideautism.co.uk
Alongside Autism offer training and one-to-one sessions to autistic adults. The service can be accessed via groups, one-to-one sessions and via Skype.
Alongside Autism also run the PAPA workshops for us.
Sussex Services for Autism: www.servicesforautism.org.uk
A not for profit community based service offering personalised support for autistic children and adults. Also offers support and advice to parents, carers and families.
Aldingbourne Trust: www.aldingbournetrust.org
Offers support services, including employment support to autistic people as well as people with learning disabilities.
The Curly Hair Project (CHP) https://thegirlwiththecurlyhair.co.uk/events/
An award-winning social enterprise founded by autistic author and entrepreneur Alis Rowe. CHP resources are used by individuals, families and professionals worldwide.
Adult Diagnosis service in West Sussex:
West Sussex Neurodevelopmental Service:
National Autistic Society https://www.autism.org.uk/about/diagnosis.aspx
Mental Health and autism
The first port of call is for the autistic person to talk to their GP.
Pathfinder West Sussex: https://www.pathfinderwestsussex.org.uk/
Pathfinder provides the following services in Adur, Bognor, Chichester, Crawley, Horsham, Littlehampton, Midhurst, Mid Sussex and Worthing:
- A single point of access to mental health and wellbeing support
- A range of services to support people with their mental health and wellbeing
- Advice, information and sign-posting, including clear information about what support is available locally
- Access to a clinical service provided by nurses and occupational therapists from Sussex Partnership NHS Foundation Trust who work alongside other Pathfinder agencies.
Sussex Recovery College: www.sussexrecoverycollege.org.uk/
Sussex Recovery College offers educational courses about mental health and recovery which are designed to increase your knowledge, skills and promote self-management. These include courses on autism / adhd/ ocd etc.
The National Autistic Society has information on mental health and autism: www.autism.org.uk/about/health/mental-health.aspx
Coastal West Sussex Mind www.westsussexmind.org
CASS – counselling and autism spectrum support www.casscounselling.co.uk
CASS is a counselling service designed to help those on the autistic spectrum and to assist their families, friends, teachers and other supporters.
Work Aid: www.aldingbournetrust.org/workaid.html
Impact Workability: http://impact-initiatives.org.uk/services/adults-and-older-people/workability/
National Autistic Society: www.autism.org.uk/advice-and-guidance/topics/coronavirus/benefits
Advice Now have some good information: https://www.advicenow.org.uk/tags/sickness-and-disability-benefits
Universal Credit Top Tips for Carers Download here