Here we post the latest news from Carers Support West Sussex as well as blogs from our staff, Trustees, volunteers, carers and other guest bloggers. If you think you’d like to write a blog for us, email email@example.com
Val is running for Carers Support at Run Gatwick on the 13th May and cares for her daughter Stella. Val and Stella Val at the Horsham Parkrun "I've always tried to look after my health and to stay fit [...]
Jane is our Dementia Team Lead I consider myself lucky to be the team leader for the dementia carer team here at Carers Support West Sussex. I’ve had both a personal and professional interest in dementia for many years, along with a passion to improve the [...]
Our Newsletter Winter/Spring 2018 Including details of: Changes at the top: We hear from Lesley Marginson as she steps down as Chair of Trustees and from the man replacing her, Alan Botterill. Our new website: We have a brand new website that we hope will make it quicker and easier [...]
Due to the adverse weather over the next few days, it may mean we have to cancel some of our support groups. We'll be keeping this page updated so that you know which groups won't be going ahead. Cancelled Groups: Eating Disorder Carers Support Group [...]
Mary Hellyer is our Carer Services Manager for the north of the county For many of us the word assessment conjures up very negative images in our mind of taking an examination at school, having someone check up on the quality of our work or making a [...]
Jane Brown is our Carer Services Manager for the south of the county. When you look in the mirror what do you see? You in your role as a friend, partner, relative, carer? Or do you see yourself, the person you are, the individual you? When you [...]
In January, carers from our men’s group were welcomed to the Men in Sheds project based at Northbrook College, Worthing. Men in Sheds started in Australia and now has over 400 sites across the UK, where members share the tools and resources they need to work [...]
Penny is a Specialist Support Team Leader Last year we received a call from Vicky Baker at the Sussex Partnership Foundation Trust (SPFT) asking for input from, and involvement with, family and friend carers of people with a learning disability. She was keen to understand carer’s experiences, [...]
Lyn Chappell - Emotional Wellbeing Programme Lead Every year, like so many people, we get out our Christmas decorations. These are the same ones that we carefully boxed up last year. There is one in particular which catches my eye; a silver tree decoration. Just one word [...]
I am pleased to send this message as the new Chair of CSWS having been elected a trustee at the AGM and elected Chair at the Board meeting on 7th December. Firstly, on behalf of all of our carers, volunteers, staff and trustees I must record heartfelt [...]
Anne Hardy – Communications and Marketing Manager Anne has been working for Carers Support since September 2015 With Carers Week upon us I challenged myself to develop a shortlist of values that I think would make a real difference to carers living in West Sussex. I could [...]
Jane is the Dementia Team Leader. Here she writes about some of our work with partners to support dementia carers. This morning I’m meeting with one of our partners, Age UK Horsham, to see how we can work together to support our dementia carers in the Horsham [...]
Nicky is a Dementia Carer Wellbeing Support Worker with Carers Support West Sussex. Here she writes about working on one-to-one support via our mailbox. This week I have contacted a carer who lives in Chichester. She was referred to me via the Dementia mailbox. This carer has already [...]
Jackie is a member of the Carers Support Dementia Team and has written a piece about what it's like meeting new carers at our 1:1 sessions in Henfield. Today I have set up my ‘work-camp’ at The Haven in Henfield where Carers Support West Sussex have a [...]
Dennis is a Dementia Wellbeing Support Worker with Carers Support West Sussex. Here he writes about what its like setting up one of our dementia awareness courses. Right, I’ve been asked to do a four-week dementia awareness workshop, but where? Sort venue with suitable dates available and [...]
Eric is a carer living in West Sussex. He's asked that we don't publish any further details. Here is his story. My wife has PSP (Progressive Supranuclear Palsy). In the early stages she was able to be mobile using a three-wheeled walker. We used to enjoy going [...]
We couldn’t work out how you attribute the costs of loss of confidence, feelings of guilt, continual fatigue, the impact on your own health and wellbeing, the impact on family relationships and lost friendships.
I continue to learn new things every day. I have met some amazing people and I have made many new friends from all walks of life that I would not have met if I had never volunteered.
What’s really helped me was learning and accepting that I’m not just a carer. I stopped defining myself by that role and started doing some things for me. It’s far too easy to pour everything you’ve got into caring and forget that you deserve a life too.
We had regular visits to different hospitals, even Great Ormond Street, seeing physiotherapists & consultants, also a very expensive time with the travelling costs involved. The first few years were really hard. We felt totally alone getting on with it.