For help and support for People with Learning Disabilities/Challenging Needs who receive little or no support from West Sussex County Council.
For guidance when completing PIP application forms see attachment from Carers UK
For local services and support for people with learning disabilities and their families Mid Sussex Worthing
For information and how to access welfare benefits, charitable grants and support services
For information about the Learning Disability Health Facilitation Team, Hospital Passport and other health related information
We can also support you if you are a Parent Carer or caring for someone with an Autistic Spectrum Condition. Click on the buttons below to jump to those pages.
Useful Links and Information
Mencap want to improve the lives of people with a learning disability and their families now, and fight alongside them for a better future. They team up with our network of over 400 local groups to reach people across England, Northern Ireland and Wales.
Organisations in West Sussex:
Aldingbourne Trust Offer support services, including employment support to autistic people as well as people with learning disabilities.
Carers Health Team Offer advice, information and support for carers to help improve and manage their own wellbeing.
Connect to Support Links to other local services who can also offer support.
Impact Initiatives For advocacy and employment support.
Learning Disability Partnership Board (LDPB) Made up of people with learning disabilities, carers and people from health and community services. The LDPB meet together to talk about important issues for people with learning disabilities and their family and friend carers, such as advocacy services, direct payments, work opportunities and social care services in West Sussex. The aim is to make sure people with learning disabilities get their rights and that people who provide services make their services available to people with a learning disability and make them easy to use.
Access to Healthcare for information about healthcare services for people with LD/Challenging needs.
BILD uses its skills, knowledge and experience to turn policy into practice, solve problems and improve support for people with disabilities.
Challenging Behaviour Foundation (CBF) provides practical information and support for families about understanding and supporting children and adults whose behaviour challenges.
National Institute for Health and Care Excellence (NICE) guideline page on challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges.
Money and Benefits
Citizens Advice West Sussex For independent and confidential advice on housing, benefits, debt and money , employment any you legal rights.
Universal Credit FAQ’s Frequently Asked Questions (FAQ’s) about Universal Credit answered plus helpline and resources from Mencap.
The Universal Credit Personal Planner aimed at helping financial and digital preparation
Planning for the Future Guide Renaissance Legal have launched a free guide for families designed to help parents and carers understand the issues they may face in the future, and what can be put in place to protect a disabled or vulnerable child.
Positive Approaches to Support A website for families who care for children, young people or adults with a learning disability or developmental difficulty (including those who are autistic). There is information for supporting your own wellbeing and supporting choice, independence and communication for your relative, and how to support your relative if they display behaviours that challenge.